WHY am I sharing all of this? This unfortunate experience was FORTUNATE in that it got my thinking-really thinkin-about things I know and believe-but hadn't practiced. Three reasons-actually, four...
- BLOGS...are for sharing information...and, while this post is not on how to stamp or layout a page, it does have some information I FEEL is worth sharing...if it seems like a rant, I apologize. I hope you will read through that aspect if it does and look at the WHOLE PICTURE--the PORTRAIT...of what I am trying to say...
- DO NOT be afraid to be your own health advocate!! Too many times we sit back and take a doctors advice and rx's simply because they are a doctor and "they know best"! They do not! Here's a good analogy of what I realized this morning: We have a portrait before us-we live in our bodies, we KNOW our bodies and we know BEST what our bodies have been through/are going through. We know and see the details the large picture presents. The doctors, on the other hand, have a wallet-sized snapshot. Because that snapshot, in my instance, only revealed that the heart tests were normal, and there was a blip in the the corner my gall bladder was in, that was, of course, in their opinion, the culprit. What wasn't taken into consideration was the fact that yes, I was out of pain (thanks to pain meds I, who suffer from chronic headaches and fibromyalgia was out of pain)and therefore relaxed, and had done absolutely nothing other than go from bed to bathroom, that that might possibly be the reason the blood pressure and heart tests produced a negative reading? I am sure a heart monitor connected to me as I go about my "normal" day--would have an entirely different picture! And, you would think...that the lunch prepared by the hospital dietitian would be "safe" to eat. Since I had told 3 people that I know of that I was wheat-allergic, that it was ok. NOT SO! There was a goof. It was, I hope missed and the dietitian was not told and hence the mistake made on those grounds. I can understand the populations confusion over wheat--but to think the dietician would've thought this was safe is well---scary. Had I not been my own advocate, I would now be taking massive amounts of steroids and itching profusely.
- HAVE ANOTHER HEALTH CARE ADVOCATE APPOINTED! Ok-I should know this! I worked for an attorney. Had I not been able, for whatever reason to communicate, someone needed to be able to do this for me. Legally. Two sets of ears are better than one! That's always good-but to have someone you know and trust being able to speak for you if you cannot---is a must. GET A HEALTH CARE POWER OF ATTORNEY and a LIVING WILL made.
- If you are not receiving the care and/or results you feel--in your gut--feel, are appropriate--get a SECOND (or third or fourth...) opinion. I have tried several doctors approaches. They are not relieving my symptoms or solving my problems. This scare woke me up. I do not want to have a significant heart issue-and I am VERY GLAD all the tests were negative. I want them to stay that way---so I am going to go and have a "come to Jesus" (no disrespect there!) with my physician this afternoon. I am going to relay what happened; what the doctor thinks happened; tell her what I KNOW happened...and how I want us to address my issues. We can come to an agreement both of us can live with-or I can find a new physician (as my late husband used to say, "I hired you, I can fire you!"). While doctors are highly educated-they are not God! They are not all-knowing. Ever wonder why it is said that doctors have "practices"...? Think about that? How do they know what works...they PRACTICE. On what? on PATIENTS. Ever think of the saying "practice makes perfect..." in terms of a DOCTOR? Probably not. We tend to think doctors know because well, they're doctors. THE BEST physicians I know...LISTEN. They use all their senses to diagnosis. They look at the whole picture-the PORTRAIT version. THEN they work WITH their patient to determine the best route to take.
Part of the reason I am sharing all of this is because I think we all learn through our experiences as well as hopefully, the experiences of others. We learn what to do-or not to do-in working with the tools and materials of our crafting experiences-as well as with the rest of life. That, and the fact that my quality of life--the time and energy that I have spent on what I LOVE and WANT to do-and more often than not CAN'T DO because of my health, has suffered greatly. It is not a condition that cannot be helped-its just that the physicans that have been in charge of my care feel it more medically acceptable to give me numerous rx's vs. the one that they KNOW and I KNOW would actually work--because of the POSSIBLE complications. If I, as the patient, respect those possibilities, assume the responsibility along with the physician, and am willing to take the risks, I should be allowed that chance. ENOUGH! Time to go relax!!! I pray...that something that I've said has been helpful to someone. Or at least challenged some thoughts and feelings and made you think. Oh---and please, please--go Google SYMPTOMS OF HEART ATTACKS IN WOMEN. Thank God I did not have one-now I am off to try and take some proactive action to prevent one! Until next time, happy stamping and scrapping.